Today in 2019 I had my 2nd brain surgery. So I celebrated!!
Celebrating the anniversary of this surgery! This was how I looked coming out of surgery & it reminds me I am alive and extra prayers for...
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Marissa DeVaul Parmer
- Dec 11, 2022
- 4 min
Life moves fast, never take for granted the time you have!
The anniversary of my 2nd brain surgery popped up in FB memories: Many of you might remember these postings, but those that are new to my...
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Marissa DeVaul Parmer
- Dec 6, 2022
- 3 min
The Porch light changed & the brain decided to have technical difficulty
Promised Continued Epilepsy Awareness all year long I had planned a blog posting on December 1st and I told myself, at least 3 days a...
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Marissa DeVaul Parmer
- Nov 30, 2022
- 2 min
Porch light goes from purple to green, but Epilepsy Awareness never ends
Epilepsy Awareness Month comes to an end, but for our family, the battle is 12 months of the year. Our family journey we thought was...
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Marissa DeVaul Parmer
- Nov 21, 2022
- 5 min
Monday Motivation (boys coming home) after a mixed feelings prior week
Week of active #Seizures I am proud to say though, I have not missed a day of at least some type of exercise to try and keep my body and...
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Marissa DeVaul Parmer
- Nov 11, 2022
- 3 min
In Honor of Veteran's Day: Epilepsy is common
Thank you to all #Veterans on this special day for all the sacrifice you give for our freedoms. If you or if you know of anyone that has...
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Marissa DeVaul Parmer
- Nov 8, 2022
- 3 min
I hate to admit they're usually right.....
Disclaimer: This post was meant to be done earlier, but it has been a rough few days with the changing of the clocks. "normal" people...
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Marissa DeVaul Parmer
- Nov 1, 2022
- 2 min
Shine YOUR light on Epilepsy & POP-OUT IN PURPLE!
November Is a Special month to our family and over 65 million people worldwide. This month I will be blogging various facts about the...
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Marissa DeVaul Parmer
- Oct 27, 2022
- 2 min
Thankful Thursday: Gratitude is what YOU make it!
Happy Halloween Reminder Just a reminder to place out purple pumpkins to raise #EpilepsyAwareness Our family and many others say thank...
33 views2 comments
Marissa DeVaul Parmer
- Oct 25, 2022
- 5 min
How do you do it? We (our family) doesn't have a choice.
Reminders of some disclaimers for #MyGlitch blog: The #MyGlitch blog became another avenue extended off #MyGlitch FB page which we began...
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Marissa DeVaul Parmer
- Oct 21, 2022
- 2 min
Why not paint your Pumpkin PURPLE? Happy Halloween!!
Purple Pumpkin Project by the Epilepsy Foundation The story all began when a dad was driving through Connectitcut, and they stopped at a...
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Marissa DeVaul Parmer
- Oct 19, 2022
- 2 min
SUDEP Action Day: October 19, 2022 WORLDWIDE
I ask everyone to WEAR PURPLE TODAY. Start the conversation and spread #SUDEPAwareness, on this designated day. What is SUDEP Action Day?...
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Marissa DeVaul Parmer
- Oct 17, 2022
- 5 min
Monday Night Football why not give a Mayo Update
**Disclosure on and off day, so hopefully this makes sense** Winning with #MyGlitch space & exercise I am very blessed with my husband...
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Marissa DeVaul Parmer
- Oct 10, 2022
- 3 min
MyGlitch space created by Brent, He must of known my Glitch Brain and heart needed it!
My whole family in Hurricane Ian's path(besides Brent and Broc) and I am getting on a plane? Anxiety/MyGlitch overload! I was off to OH...
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Marissa DeVaul Parmer
- Jun 15, 2022
- 5 min
June15th Anniversary of when stitches came out of my RNS implant in 2017 & June 1st Mayo update
Hard to believe it's been now officially 5 years since our family's journey began with my RNS Implant device. Below you will see this was...
72 views1 comment
Marissa DeVaul Parmer
- Jan 19, 2022
- 3 min
Cardiac Dr. Update & Mood changes with my men back out of the house :( Working out...slow progress
Cardiac Electrophysiology Appointment 1/18/22 Doc Summary The doctor stated that no significant findings were found, beyond what we...
340 views1 comment
Marissa DeVaul Parmer
- Nov 10, 2021
- 3 min
2nd type #MyGlitch & Meds mistaken OUCH!
Let me first say I warned people of how Daylight savings time and sleep patterns changing can affect someone with Epilepsy.....well it...
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Marissa DeVaul Parmer
- Nov 8, 2021
- 2 min
Daylight Savings=Sleep Pattern Changes=Rough weekend
I missed my promised post yesterday, but here is why: (body said no & I believe it or not listened or I should say my family made me...
49 views2 comments
Marissa DeVaul Parmer
- Nov 3, 2021
- 2 min
1 type of #GLITCH: Auto-Immune Epilepsy
Let me first say I have the MOST wonderful hubby, as he has worn #PURPLE daily since November began to bring attention to #GLITCH...
48 views2 comments
Marissa DeVaul Parmer
- Sep 29, 2021
- 2 min
Living life with an occasional GLITCH!
Every person that is diagnosed with Epilepsy has their own "Glitch". I want people to understand just because some forms of Epilepsy can...
370 views2 comments
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