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Living life with an occasional GLITCH!
Every person that is diagnosed with Epilepsy has their own "Glitch". I want people to understand just because some forms of Epilepsy can not be seen (it's known as an invisible disability), it does NOT make it any easier. It is extremely hard physically, emotionally and mentally. THERE IS NO CURE! There is only controlled or uncontrolled Epilepsy. This is why it is very hard on the the individual, but it's just as hard on the rest of the family/support system. It truly is
Marissa DeVaul Parmer
Sep 29, 20212 min read
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A Glitch Walk Into A Wall, To A Relaxing Kayak Ride With My Hubby
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Living with a Glitch means learning to listen to those warnings, even when I do not want to. YES, my stubborn Aries tries to listen.... Some days I shake it off and keep going. Other
Marissa DeVaul Parmer
Aug 214 min read
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Spiderman Brand New Day & MyGlitch
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Sometimes a movie follows you home. We were fortunate to have both Bryce and Broc home for a week. Bryce drove home from Grad school to celebrate Broc's 22nd bday on the 3rd, and Bren
Marissa DeVaul Parmer
Aug 115 min read
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More Glitches.....WHY....
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Mayo called to check in, due to increased GLITCH on RNS data When Mayo called because my RNS data was showing more of My Glitches. I haven't been having very good days and i have had
Marissa DeVaul Parmer
Jul 244 min read
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Summer bring LOTS of fun, but can also be risky living with MyGlitch
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Growing up I always pictured summer full of vacation time with family/friends, sunny beaches, being at the pool, running around just in the yard/throwin the football laround or kickig
Marissa DeVaul Parmer
Jul 106 min read
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Travel Tips to Prevent Glitches on the Go
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Traveling across various time zones is always challenging for MyGlitch. Over the years, I have tried various methods depending if I am going ahead or going back, or even across 2 time
Marissa DeVaul Parmer
Jul 15 min read
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Pulling dreaded weeds & seeing the flowers bloom relates to My Glitch
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. This week I have spent hours pulling too many weeds I can count, they have spread greatly due to all the rain we have had, followed by extremne heat. (reminder those of you living wit
Marissa DeVaul Parmer
Jun 123 min read
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MyGlitch almost had me miss Broc's graduation/senior day for UTSA
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. MyGlitch couldn't be seen by others, but I almost missed Broc's graduation To say it's been a busy few months is an understatement. Between baseball games, organizing the house betwee
Marissa DeVaul Parmer
May 284 min read
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MyGlitch & how it relates to Michael King's book
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. The reading of this book, changed my blog entry for this week, COMPLETELY!! I even deleted the original entry. First off thank you to Broc's teammate for telling him about this book.
Marissa DeVaul Parmer
Apr 305 min read
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Volunteering with MyGlitch & Thank you to those that volunteer helping MyGlitch
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. In Honor of National Volunteer Week April 19-25 WHY the NEED to be a Volunteer Based on my previous Careers of working in personal training, Director of Campus Recreation/Wellness, Wo
Marissa DeVaul Parmer
Apr 223 min read
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The good & bad side of SM for Epilepsy
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Social Media & MyGlitch, I figured great topic since back on IG Living with my uncontrolled epilepsy brings many challenges. I haven't been able to drive for MANY years, and then had
Marissa DeVaul Parmer
Apr 154 min read
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Birthday & T-minus 1 month to EEG
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. Why Birthdays mean more when living with MyGlitch I don't even know where to start. Some always say its just another day, and i am just as guilty for that staement. Yet; it isn't jus
Marissa DeVaul Parmer
Apr 83 min read
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In honor of Artemis 2 Launch! MyGlitch relation to Bryce's dreams working as an Aerospace Engineer
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. How My Epilepsy Relates to Bryce's goals I am sure you are thinking, how does Aerospace Engineering along with Artemis 2 launch relate at all. I used to think the same way, until I ha
Marissa DeVaul Parmer
Apr 12 min read
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National PURPLE Day!
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling. What is Epilepsy Awareness Day? Epilepsy Awareness Day is GLOBAL wide day which always falls on March 26th. The goal is to increase the public's knowledge of a neurological conditio
Marissa DeVaul Parmer
Mar 243 min read
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Team Parmer is resilient. Not anyone will ever take that away!
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling. My Family is my WORLD, and here is WHY Living with MyGlitch uncontrolled is a daily challenge that affects not only me but also my family. Due to my various types of Epilepsy(most invib
Marissa DeVaul Parmer
Mar 114 min read
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Spring Forward & MyGlitch
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling. PLEASE REMEMBER THIS IS JUST MY EXPERIENCES WITH EPILEPSY AND THINGS I HAVE BEEN TAUGHT OVER THE YEARS, TO HOPEFULLY BE SEIZURE FREE. ALWAYS CHECK WITH YOUR OWN DR., ESPECIALLY WHEN IT
Marissa DeVaul Parmer
Mar 44 min read
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Celebrating 30 Years of Pokemon & 10 Years of Pokemon GO. How this relates to Epilepsy, and in honor of our oldest.
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling. Pokemon has been a huge part of our family For families like mine, where my oldest has collected Pokemon cards for many years.(now in graduate school for aerospace engineering, yes its
Marissa DeVaul Parmer
Feb 264 min read
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Celebrating Winter Olympic Athletes & those of us living with Epilepsy
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling. How watching the Olympic athletes, has made me feel with MyGlitch Living with MyGlitch is very personal. Just as every Winter Olympic athlete has a their own path to their goals, every
Marissa DeVaul Parmer
Feb 203 min read
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Why I have always embraced Friday the 13th. How is it related to MyGlitch
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling. Friday the 13th often carries a reputation for bad luck. Many avoid the day, due to superstition of it being bad luck and "bad things" will happen. For me the number 13 has always been
Marissa DeVaul Parmer
Feb 134 min read
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I almost let AI speak for MyGlitch 2026
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling. Why I almost let AI help speak for me Due to the many tings that have been going on, I wanted to have AI write something for me, thinking it was best for my mind as well as make it easi
Marissa DeVaul Parmer
Feb 45 min read
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