Team Parmer is resilient. Not anyone will ever take that away!

Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling.

My Family is my WORLD, and here is WHY

Living with MyGlitch uncontrolled is a daily challenge that affects not only me but also my family. Due to my various types of Epilepsy(most invibile, unless a drop to the floor) people have no idea what it truly is. This often leads, to hurtful comments not onnlyabout me but to them as well. My husband, and sons stand behind me with strength, and also for all those living with Epilepsy. They do not let anyone to speak about epilepsy in a degrading way towards me & others who live with it. Their strength inspires me every day, teaching me about courage and perseverance in ways I never expected.

My husband is Team Parmer's ROCK(he would say otherwise)

I probably don't tell others enough about what he does or at times I probably say it to him too many times(sorry honey) He has been our rock through every twist and turn. It all started before we even knew i had MyGlitch, took many years to even figire it out.(go back to read the start of my blog to learn more) From multiple moves to different states helping ys all adjust to that, all while I am still working FT but unable to drive. At this time, the boys were young in KY. Then came my 1st RNS surgery, A move to FL in the middle of the boys in HS, for my 2nd RNS surgery. Along came COVID causing more to deal with. I had COVID restrictions due to my autoimmune epilepsy, which meant so did they because I couldn't be exsposed.Even during this while others made fun of them for wearing masks, they didn't let it hit them. Oh and a FL Hurricane went right over us, what a welcome to FL living. LOL. Durin all of this he showed us steady strong love was has been invaluable.

Balancing his work schedule and needs with the needs of our family, he finds time to support us all. This kind of support creates a foundation that helps us face uncertainty with confidence. It also shows how epilepsy affects not just the individual but the entire family unit. Now he helps me deal with now being empty nesters, home by myself for long periods of time, how I can still connect with others, be safe by myself, and not let my own mind get to me. Now don't get me wrong being empty nesters also has its postivies:)

HE SHOWED THEM FROM THEM BEING LITTLE GUYS LEANRING

HOW TO PROTECT ME WHEN NEEDED.

ALL OF THIS HAS SHOWN OUR SONS WHAT IT MEANS TO BE A GREAT

HUSBAND, DAD AND FRIEND. I COULD NEVER THANK HIM ENOUGH!

My Youngest Son’s Journey: Strength and Resilience

He plays a Division 1 baseball at UTSA honors student now in his senior year taknig 18 credits. His journey has not been without obstacles. Injuries have tested his physically & mentally but he refuses to let setbacks define him. He won't let others tell him either. His commitment to his sport and his team is remarkable. His passion for baseball shows through all his ations, just go watch & you will see.

He also serves on two committees representing his team, always putting the needs of his teammates before his own. His selflessness and leadership shows maturity beyond his years. As a mom you can imagine how great it is watching him pursue his demanding goals teaches me about courage and not to ever give up.

I continue to learn A LOT frmo his Determination

• Resilience through injury: Despite physical setbacks, he continues to train and compete while also mainting the most important in his classes

• Leadership:Being on committees highlights his dedication to supporting others.

• Focus on goals: He keeps his future ambitions in sight, refusing to be discouraged.

  His attitude reminds me that challenges, whether physical or health-related,

  can be met with determination. Never Give Up.

My Oldest Son’s Path: Persistence in the Face of Setbacks

My oldest son graduated with an undergraduate degree aerospace engineering with Honors at EmbryRiddle. Despite his strong qualifications, he struggled to find a job after graduation. This was a blow to him he did not expect, but he chose not to give up.

He is now attending graduate school at The University of Kentucky for mechanical and aerospace engineering. He continues to be that honors student, loyal to friends, he mentors undergraduate students, serves as a teaching assistant for a professor, and works on research/laser/space satalittes projects he plans to present at confernces. These activities have helped him grow in confidence and come out of his shell. It is amazing to see this as a mom, who deals with daily challenges.

What His Journey Teaches Me

• Persistence: Job interviews with many tuen downs, did not stop him from pursuing his dreams.

• Giving back: Mentoring younger students and showing his passion to help them grow. This show his commitment and dedication.

• Academic engagement: Active participation in research and teaching has taught him confidence.

His story is a powerful reminder that success & life

may have to go a differnt jway then planned.

Just like MyGlitch comes and goes,

he has taught me to not let it stop me from being strong.

What Team Parmer wants YOU to Know

Living with uncontrolled epilepsy is NOT easy. It took us many years of varuous turns to learn how we caould support each other with all of us still being able to rech our own goals.

Don't take me wrong, we are like any other family that

has its good and bad days.

By sharing our story, we hope to inspire others to find strength in their own journeys. It is possible to live beyond the stigma and limitations MyGlitch might bring.

If you or someone you know is living with MyGlitch,

remember that you are NOT alone. Seek support, speak openly(when you feel ready) Have your best courage that comes from facing each day with determination.

Team Parmer hopes we can help build a

more informed and compassionate world.