Birthday & T-minus 1 month to EEG
- Marissa DeVaul Parmer
- 4 days ago
- 3 min read
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling.
Why Birthdays mean more when living with MyGlitch
I don't even know where to start. Some always say its just another day, and i am just as guilty for that staement. Yet; it isn't just another day. I am so thankful for my family, friends and all those in the epilepsy community and those that support Team Parmer. Too many names to say, and i don't want to leave anyone out. I am beyond blessed that the various states we have lived, there has always been someone in our corner no matter our circumstance. Many like me who live with an uncontrolled Glitch, aren't as fortunate as my family and I to have that. So first THANK YOU TO ALL!
Why isn't it just another day you ask? over the years we have learned that at anytime my seizures can change types, how and why they occur, why i can go certain time frame being controlled and all of a sudden its happening too much. Which means plans may have to change at the last moment, or can't happen at all....yes even the "just another day birthdays". So each year I reach the "it's just another day Birthday" It means we have survived another year of battling my uncontrolled Glitches, and taking life day by day, and treasure every moment that happens daily just that much more.
Did you know every year April 8th is National All Is Ours Day?
The irony of this, fits our life living with MyGlitch.
As stated by the National Calander day: "Celebrate the day is by appreciating everything we have. Enjoy the fresh air of all that nature gives us. Even when we don't have much, what we do have is a blessing. This approach encourages counting those blessings and avoiding thinking about the things we do not have.View the day is by sharing all that we have. Regardless of what we have, sharing it seems to make tough times easier when we all work together. The greatest times and the greatest things in life are those that are shared."
So matter if the day bring the ever burning fires in MyGlitch
like the Vegas Mirage Volcanos or the beauty of the
musical Vegas Bellagio Fountains symbolizing the great days,
TeamParmer treasures everyday we are given.
Today also marks 1 month until my Outpatient. EEG
I haven't had an EEG in a while and my seizures seem to be more active, and changing just a bit. So Mayo is having this on May 8th-May 11th. Eventhough I am not controlled usually they are very short in length due to my RNS stooping them, along with my current medications. Don't get me wrong, they ARE MUCH better vs to before my RNS device. The EEG we hope will bring somelight on why this is happening. Is it just due to my menpause life of the increased terrible hot flashes with low BP & low O2 levels, my nocturnal seizures causing more daytime siezures, my GAD65 autoimmune levels raised again or who knows? As those that have folowed MyGlitch journey; we do not know for sure why I even developed Epilepsy.
Stay tuned, My follow up will be in June 15th,
and we will see if the
RNS algorthym or the meds need adjusted.
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