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November is Epilepsy Awareness month, to our family we live it daily. NEAM


What is epilepsy awareness month and what is 2023 theme?

According to the National Epilepsy Foundation "November is National Epilepsy Awareness Month (NEAM), and this year we are launching a public awareness campaign to reduce stigma associated with epilepsy. The campaign, Change Our Epilepsy Story, aims to encourage people with epilepsy and their caregivers to share their journey with epilepsy, including struggles living with this condition and challenges they’ve overcome. If we share our epilepsy stories, we can educate those around us and, in turn, address the stigma surrounding epilepsy and seizures." I encourage you to visit their site to find your local foundation and see what events they might be having this month.

What will I be doing throughout NEAM? A brief snapshot.

Our houselights have already been changed to purple, for the whole month. In hopes others will ask why are your house lights purple? Just by doing that, it creates the conversation about epilepsy. If you are able to do that, I ask you to do so as well. Then post pics on SM tag me if you are on twitter, showing your houselights are now purple. I would love to see them shared on my blog too!

Not that I don't already wear purple almost daily, I will make sure it happens this month. Key wearing MyGlitch gear, so others will ask about it. Make sure to checkout the shop as there are Glitch shirts there, They are uni-sex and all sizes available, various designs.(thank you for advocating for Team Parmer) This month since I will be at Mayo starting November 17th, I hope the people I encounter will ask me just what is MyGlitch. I need to try and break that stigma epilepsy has and also educate people within my groups there.

By reading my blog:

Mondays(Did You Know) will continue to be educating others about epilepsy but also about my own journey.

Wednesdays(Wellness) Things which I do, learn from others living with epilepsy and have been taught my medical team to try and reduce my number of seizures. Just by starting my PRC is one example of this.

Fridays(Friends & Family)you will learning other people's journey's every Friday. This Friday make sure to check back and read about a mom and her daughter living with epilepsy. From a mom's perspective, from diagnosis to present.

Sharing what other fellow epilepsy warriors, advocates and families share on my Twitter (@RissEKUParmer) account I will be RT what other epilepsy advocates have to say. Please, feel free to DM me there if you want certain topics covered or you yourself want to be featured in my blog. Also, comments on my blog or via email.

Plus MUCH more!

So what will you be doing?

Just by reading and sharing my blog you are being an advocate and participating in NEAM. Thank you to all of you that do so. Remember check back often, and catch back up on any entries you have missed.

The Glitch Shop is open! We are ready for NEAM for anyone.

You don't have to have epilepsy to help advocate.


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