I almost let AI speak for MyGlitch 2026
- Marissa DeVaul Parmer
- 43 minutes ago
- 5 min read
Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a sentences out oforder, or repeat them, spelling.
Why I almost let AI help speak for me
Due to the many tings that have been going on, I wanted to have AI write something for me, thinking it was best for my mind as well as make it easier with the shoulder pain Brief summary of what has been happening & then I will explain what changed my mind.

Has been a while since my last post, and both my mind and body have been tking a toll on me. If you read one of my previous posts, my shoulder surgery was postponed until end of November. (i also ended up being hospitalized a few days after surgery & it canceled our planned trip to KY to see Bryce) So meds and my RNS were also adjusted. By this happening recovery was delayed, and so was my rehab level, not to mention my heart by feeking I let Bryce down. I must say the visit to Broc(last post) has been helping my frsutration from PT, along with the FaceTimes from Bryce.
For those who also live with epilepsy or any other chronic condition know that there is not a "normal" recovery or "normal" PT that is followed. In fact just last week, a seizure started to come on during a PT session, so once again a set back.
I got to enjoy seeing our young men over the Christmas break, and of course that in itself I wasn't feeling like writing a blog but also was feeliing helpess and not being that "mom" I want to be for them. Due to my restrictions, the plans we had also could not happen. Especially with them being older, and don't have much time to spoil them:) Instead; i was still restricted as I am now not able to lift anything over 5lbs. Afterall just lifting some dishes, laundry baskey or a potted plant weighs that much. Even though I follow the daily strength, stretch and stem provided me. (If you know me, having a big restriction of just a simple of over 5lbs, I don't do well with.....stubborness)
We also got to spend the time with my family for a short time, but was glad the cousins got to all get together and see their grandparents. With all of them being older, many are going different directions and of course developing their "adult" life.Hence; who knows when we will all be togeyther again. It may not have ended the way we had planned, and emotions were high based on some actions and things said. You can't take anything back, or change it but you do have choices. You are still family and that is a bond that at times will be challenged, but those are the people in your corner.
For those who have young kids, enjoy those crazy days because once you become empty nesters, you ask yourself why did i stress so much and not just take in every moment.
What made me changed my mind of not using AI, and blog my own words
I have actually typed a few different times since the boys have been back at college, and kept deleting them. My frequent shoulder pain, the crazy weather making my body pain worse, my mindset in general has not a good spot at times, and have focused more on doing some reading, crosswrods, and legos. Thinking doing those during the day would help me write better, but i just kept getting upset because i was home once again by myself and now I couldn't even do things I normally would do because of my shoulder surgery. Then when Brent came home at night i wanted to spend time with him. I am blessed how much he sticks by my side.
Feeling not myself, and thought maybe AI could speak better for me. AI did sound "better/well spoken" , but it did not sound like me and my brain/MyGlitch.
I always have said I would be honest & never go back to make corrections in my blog, so why was i thinkng of using AI?
Then I received signs that this blog is my outlet, and to my surpsie others reached out and wanted to hear more. Asking why I haven't written since my surgery.
A person who does a YouTube Vlog weekly speaks from the heart and could care less what others might react, he just wants to show others it is ok to not always feel "ok". I am a greatful follower of him
2 ladies whom I have become close with, reach out at least everyother day. To catch up on oursleves and also chat about all of our boys.(i met them when we moved here) one brings me plants or just vists when she can from work, and the other comes over to get me out of the house to take me on a walk on her work breaks. Blessed.
A couple of friemds whom I met via my PRC program at Mayo clinic whom I still talk to, 2 years later have stuck by me. Having their own struggles, speak of how i/my family inspire them daily. Looking forward to a zoom call this Friday with them.
HS & college friends reaching out and checking on me to make sure I possibly was back in the hospital.
DM's from fellow epilepsy fighters and advocates, asking for my presence be back
I received a hand written letter from a previous personal training client back in MN of mine. Stating what I have done many years ago helps him continue on his own health journey. Plus how Brent's love shown to me has helped him with his wife deal with a chronic illness.
Then hearing from mom's i have met through Bryce & Broc, letting me know how they are doing and wanted to see when I would be there again. Again; asking why I haven't blogged yet for 2026
Lastly; my folks/family members asking why? Brent reminding me not only does this help me prevent more cognitive decline; it reminds our sons that you should never let your limiations prevent you from doing something. (this hit my heart the most)
Reminded to me by my Epilepsy phone counselor.
If you are recovering from surgery, managing a chronic condition like epilepsy, or simply trying to balance self-love with family life, here are some practical tips based on my experience:
Be patient with your body and mind. Healing takes time, and setbacks are normal. This is my hardest to get out of my head/brain
Prioritize self-care daily. Even small acts of kindness toward yourself add up. Exercise, meditation etc.
Communicate openly with family/friends. Share your needs and listen to theirs.You will not always agree, and that is ok.
Create routines that include both social time and solitude. Balance is key. With you being unable to drive or walk outside by yourself, your SM/blog/phone is your form of connection.
Seek professional support when needed. Doctors, counselors, support groups, physical thereapists and more can help.
FOCUS ON PROGRESS, NOT THE PERFECTION YOU EXPECT FROM YOURSELF
(Stay tuned for a project i am working on,
to spread epilepsy awareness even more)




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