Team Parmer Lives By Being Resilient

Disclosure: As a reminder I don't go back and correct any mental errors while writing because that is true to how my brain works with living with epilepsy. In order to understand this by someone just joining, one example at times I might speak a seteances out ouf order, or repeat them, spelling.

How do you live with uncontrolled Epilepsy and be happy?

I get this question often from others. First off, being happy, is a choice you make. Just because you may have more or be perftectly healthy, doesn't mkae you for sure "happy". When given a chronic illness diagnosis like Epilepsy, it was VERY hard to hear. Sure it is not easy living with uncontrolled epilepsy for our entire family. When you have no controll over something in your life, it's your choice to live in the moment to be that "happy" person. If you have read the various topics in my blog, you can understand it is a never ending journey which you learn lots of things of how strong you and our family can be even in the worst of days. Please do not take this as I or we do not experience times that are not what people call "happy", because everyeone has those times. Especially for those like myself which also live with fibro, anxiety, depression, menopause just a few for examples.

How does being Resilient relate to living with uncontrolled Epilepsy?

First off I have to admit this draft was started on May 16th,

yes you heard that correctly.Today it is July24th

Why did this happen, and how does that show you're resilient. First off, just by admitting this I am showing you the importance of honesty which in that itself makes you reislient. As i stated in the last blog entry of personal connections/SM, I don't hide behind my blog either.I had a seizure when I started this and then we started traveling from May 18 until July 14th(various time zones), having a few days home and at times only 1 day home before we left again. In-between was dr appointments, yardwork, clean house, do laundry, repack and also try to let my body rest while still trying to bounce back from seizures. Every trip was well worth the time off from my blog to try to be my best self when getting to spend time with family. I know you're saying right now, so why not before now. After-all its been 11 days home corrrect? For those of us living with Epilepsy it takes longer to recover from things such as traveling, and seizures have occurred during this time. I have been trying to be better at placng myself first as my husband reminds me I always want to be there for everyone else but never place myself first and that unfortunately causes more seizures. That in itself doesn't make it the best choice for me to be the best version for Brent and the boys, or the daughter, sister and friend I should be.

Fresh start for my blog

This original blog entry was how our entire family has become even more resiliant in all we do, due to our daily journey of epilepsy. In short our sons have shown me what they have been challenged with and haven't given up. Our oldest Bryce graduated from Embry-Riddle early with honors in Aerospace Engineering. Only to not being able to find employment in his degree, but didn't just laydown and give up. He worked at UWF, while deciding to apply for various graduate universities to get his Masters. There was a reason he didn't get that job, I fully believe as he is now beyond happy at Univeristy of Kentucky doing research, and begins his TA position, classes in August.(that was one of our trips moving him to KY in May.) Thank you to our great friends for allowing him to live with you(plus your precious dog Shadow) until he was able to move into an on campus apartment come August. Just getting his FaceTimes and seeing that smile on his face talking about all he is doing whether it be related to college, doing things with old KY HS friends or the new ones from his UK Lab work. Just last night he talked for over a hour:) Now Broc who had to take on a different roll this year for baseball as he was fighting through an injury along with having to adjust to contacts. Yes, it wasn't easy adjusting to his new role, but to him he was to do what was best for his teammates. He absolutely loves UTSA(great mentor in his business college, who knows nothing about sports but still came to see him at UCLA), the coaching staff, teammates, and trainers are his family. It was an amzing ride this year for his team(that was some of our traveling). This in itself has had his mindset to be at 100% this year, and has worked nonstop. He said it's the least I should do for my teammates who have supported me. Now he is currently up in WI playing in the Northwoods wood bat league, and has improved greatly. It has been great for him to be in a league where he can continue to get shoulder treatement while be able to play daily. (once again that was some traveling too) After each game he will text or Facetime us asking what we saw, compared to what he saw or felt, and what the coach said. Whether it be at the plate, behind the plate or in the outfield. Setting new goals for each game. We are blessed he has such lofty goals and hasn't let that hurdle detour him to come back stronger than ever. His host mom has been amazing, and the best thing I had her tell me was how much of a gentleman he is at all times. To a mom thats more important than any baseball. His host family from last year also keeps in touch.

For Brent he juggles it all. He gets in his work obligations all while he makes sure all of us get where or what we need daily from him. He asks nothing in return, ok maybe a few things like take care of myself:) LOL Stay tuned on a very scary moment we had here on Wednesday. That will be a topic for safety at home when by yourself living with epilepsy.

For me, One of our trips was to Mayo, and I will have updates on my next blog on those results and next steps currently happening. Too much on Mayo topic to add to already a lengthy entry. I guess when it's been so long since the last entry, it happens. As you can see by reading all about my husband and sons I am truly blessed. No day is ever easy but just by seeing what they do to get where they want to be is my inspiration. They say it is because it is what I taught them over the years of pushing through each day no matter how rough it was. I say the opposite. It is watching them succeed helps me want to continue through no matter what this health battle throws our way.

So if the 3 of them say that they do what they can, due to me. I owe it to them(and myself) to get back to being an epilepsy advocate, by sharing our story in order to help others living with epilepsy or simply educating others.

TEAM PARMER

will come out on top, however that may look each day.

That is what I call being resilient.

Living life with an occasional GLITCH!